Day +1 God is Great

Today was a blessing for all of us! Jayne has not had any signs of rejecting the bone marrow transplant and Doug was discharged with his heart back in normal sinus rhythm. Doug's nurse said he could walk a short hallway to the window and back. He walked it a few times to stretch his legs, when he returned to the room his heart was beating perfect!!! I told him he just needed a different view!
Jayne took a few walks around the unit but has been sleeping quite a bit. Today was the first day Jayne's white blood cell count is down to where she is neutropenic (low immune system). Her numbers will continue to drop until the red blood cells attach and start forming bone marrow, this will be around day +15.
Every Wednesday on this unit for patients, family and friends from 2:30-4:30 a group of volunteers come in and have a craft room set up with a variety of different crafts to make. I went down today when Jayne was sleeping and made my girls and I matching bracelets so when I come back to take care of Jayne over the next few months we can wear our matching bracelets!
Mom and I miss our families at home and we are so blessed to have supportive husbands (and my kids)...We wouldn't miss this for anything in the world!
Love you Jayne!!!
I can do all things through Christ who strengthens me! Phil 4:13

Day +1

Jayne is getting weaker each day and sleeping more but the transplant went smooth! Doug spent the night last night in the hospital and by mid-morning he was back into normal sinus rhythm. Still waiting to see what the doctors want to do...release him, medications, keep him... will keep you posted!
It has been so wonderful having all the prayers and well wishes! Please keep praying, recovery is at least a year, we are on day +1!

All the Red Blood Cell Babies are in!

Jayne was extremely calm at the start of the transplant! At 8:20 this evening Doug's spun red blood cells started being put into Jayne's body and the start of Jayne's new life! The process went seamless with Jayne! She rested through most of it and is now sleeping like a baby! Her anxiety level has dropped dramatically.

Doug has been admitted into the hospital for his abnormal heart rate. He was able to get his port out tonight since he was able to give Jayne 5.16 million red blood cell babies! The doctor wanted at least 3 million but wanted to see 5 million. Praise the Lord!

His heart rate keeps bouncing around 14o...praying with a good night sleep and his anxiety level going down he will wake up with his heart rate back to normal!

Mom is staying in the "family room" a sleep room for families tonight on floor 13, I am staying with Jayne on floor 14 and Doug is on floor 11. Anyone take dibs on any other floors? :)

When Jayne was done with her transplant and Doug got his port out they were able to see each other since 7:45 this morning! It was emotional but wonderful! Doug has given such an amazing gift and never thought twice about it! Love you Doug!!!

Doug is all done!

Doug had a tough start with anxiety this morning! He was told he would be put out to get his port put in this morning. He was not sedated he was nervous! Once the doctor put the port into his heart his heart went into irregular heart rate. We are praying that now that the procedure is all done he will go back into regular rhythm. Thanks for being such a great sport Doug! Love you!!!

After three hours of the blood being circulated through the machine it separated about a cup of white blood cells and blood. It is now at the lab and the white blood cells will be counted and then the transplant will start with Jayne!

Jayne's room will start being prepped in about an hour!

Waiting for Test Results

Doug was able to get his port put in this morning but when they put it in it caused his heart to go into atrial fibrillation (irregular hear rate). An echo cardiogram and thyroid tests were done. We are waiting for test results before we can move forward with the transplant.
I will keep you posted! Thank you for your prayers!

Today is the day!!!

Doug was prepped for surgery this morning and just went in! We are anxiously waiting to start the process today!!! Jayne has lots of anxiety but is holding together pretty well!

Girls Slumber Party

After everyone left tonight Jayne and I had special sister time together! When we went to the beach together in May, Jayne purchased us matching jammies so we matched tonight at the hospital! Jayne has been in great spirits and extremely strong! We are scared for the unknown but know that it is in the hands of our Lord!

Lots of visitors bringing smiles and hugs!

Today was a very busy day with visitors bringing their smiles and hugs for Jayne! Great friends and co-workers took time out of their day to come and see Jayne. She is very humbled by all the love and support she is receiving from her friends and from people she doesn't even know! The power of prayer is amazing!

Dad and Doug made it today to OHSU! It was great to see Doug and I think it made us all realize that this is really happening! Doug has been so selfless to put his life on hold to save Jayne's! Words can not say how grateful we are for what he is doing! Danny spent a while this evening reading the transplant manual... if you know Danny you know that there were a few times he let out a snore that woke him up! :) He is doing such a great job holding down the fort and being very supportive to Jayne!

Day -1 Getting Ready

Jarrod, Lucky, Kadee and Zoe sending their love to Jayne and can't wait till she comes home! Jayne is scared and excited for her new "birthday" tomorrow! The doctor told her that she will have to get all of her immunizations all over again! I didn't even think about this...so many things and is overwhelming for us all!

The chemo today forms sores in Jayne's mouth so for a few hours while she was getting her chemo she had to "freeze" her mouth with popcycles, ice cubes and ice cream! I know my kids would love to "freeze" their mouth! :)

Doug and Dad are on their way to Portland! Praying for safe travels!

Day -2

Last night was another tough night and tough morning but as the day went on Jayne was able to get some energy to walk around the unit but she was exhausted. The chemo is starting to take a toll on her.

Kadee, Danny, mom and I went for a ride on the tram today to get some fresh air and have a quick ride to the bottom of the hill and back up. Round trip it takes about 5 minutes and it sure was a beautiful view!

Jayne is resting lots today and getting her body ready for the transplant on Tuesday. Dad and Doug will be here tomorrow! I know that the 4 shots a day have been tough for Doug but he has been a trooper! THANKS DOUG!!!

Day -3 Enjoying the great weather

Today has been a good day so far! This morning Tammy and Taylor Folden came by to visit with Jayne and had fun looking at Jayne's wedding photo album and other albums that mom brought to the room for everyone to laugh at our beautiful outfits of the 80's and 90's and remind us of fun times. Chemo went well and after that was done mom, Danny, Jayne and I went outside to enjoy the beautiful weather and view. When Jayne leaves this floor she has to wear a "Daisy Duck" HEPA filter mask. I told her we need to put bows on it to match her outfits! ;) We stayed outside on the deck off floor 9 for about 20 minutes and Jayne was ready to come back in! It was good to get out of the room and enjoy the fresh air and sunshine. Now it is nap time!

Day -4 and feeling good

Yesterday was a good day for Jayne with the same chemo as Thursday, today and tomorrow. Monday will be a more intense chemo. Jayne is up to 2 laps around the floor three times each day plus her arm and leg exercises.
Danny, Kadee and Jarrod came up to visit last night and enjoyed visiting with Jayne and giving hugs!
I went for a long walk and found a Starbucks in the hospital!!! :) I am surprised how big this hospital is...there is OHSU main Hospital, Dornbecker Children's Hospital, VA Hospital, then also the Kohler Pavilion, Physicians Pavilion, Dentistry school, eye clinic, plus the tram to take down to more... You could walk for hours and never retrace your tracks as long as you know how to get back! It is extremely confusing but mom and I are getting the hang of it...I think!

Day -5 Jayne gets pampered!

Last night was a tough night for Jayne! She had an allergic reaction to her chemo and she felt like her lips, mouth and sinuses were on fire! After having the doctor come in at 3 A.M. and getting her the right meds she was able to sleep for a short time before waking up again in pain. Last nights chemo was a single dose so she will not have that chemo again! She was having a hard time smelling alcohol...the one to clean the ports with ;) but that is getting better as the day goes on.

The chemo she received today lasted 2 1/2 hours and she seems to be doing pretty good! She was up today and took a few laps around the unit and was cruzin'! We are so proud of her...she is doing great!

Mom and I took a class this morning for a few hours on what to expect in the hospital and how to care for Jayne when she gets home!

Jayne had her first friends come to visit and had a great visit from Kathi and Karina! Thanks for coming to visit, you put a smile on her face! Thank you for all the prayers, emails and phone calls from so many of you!

After her second lap around the unit her nurse nominated her to have a complimentary massage from a licensed massage therapist that specializes in Oncology patients! Jayne is now very relaxed and is looking forward to a good night sleep...well a good night with being woke up at least every four hours by the nurse.

Mom and I will be heading back to Jayne's house soon and will be back in the morning!

Room with a View

Jayne has been moved to her room on the 14th floor and it has an amazing view of part of the city, the river and Mount Hood! She has settled into her room and we moved her into the drawers and closet.

Our mom made a great poster with Jarrod, Kadee, Blake, Sydni, Chloe, Toni, Tori, Cody and Marina on it that are smiling at Jayne and made some positive signs that we hung up in her room. Any visitors that come to visit except who lives with Jayne have to gown up and glove up till test results come back on Friday to confirm she is not positive for VRE.

Kadee and Danny came up after work tonight to visit! Hugs are priceless!

Jayne will be getting her first dose of chemo tonight. The doctor said this would be the most intense of the chemo's...this week will be tough but next week will be the hardest with all the side effects from the chemo. She is not able to bring her dog (Zoe) or her cat (Lucky) with her to the hospital so Jeff, the kids and I got her a dog and cat stuffed animal so she can sleep with them at the hospital!
Jayne is in good spirits but the drugs do help! :)

The port is in!

Jayne is out of surgery after a 2 hour delay (Dr. had emergency surgery) and the port is in! Mom and I will continue to wait in the waiting room! The doctor said it could be hours before she will be out of recovery and moved into her room on the 14th floor of OHSU and we will be able to see her. I have kept Danny informed since he was doing his best to work today with Jayne on his mind!
I will blog with her room number and when chemo starts when she settles into her room she will have for the next month!

Here we go!

Yesterday mom and I drove from Boise to Vancouver to be here with Jayne. The process starts today to save her life! We are up early this morning to get ready to head to OHSU. Jayne has to be there at 9:30 this morning. She will first have a port put in then they will start her extremely intense chemo today to get her body ready for the transplant.
Doug picked up his shots and will start his 4 shots a day in his stomach on Friday.
This is a huge step but with all the anxiety we are all ready!!!

Dates are set!

After a very painful bone marrow biopsy Jayne is home and resting! Doug, Jeannie, Toni, Dad and Gail will be over tonight for a BBQ but Jayne is staying in bed! Auntie Jo and Uncle Bill are bringing our cousin Mike over to see Jayne for a quick visit while he is in town. Jayne is looking forward to seeing him tonight!
With everything tomorrow going smooth with the physicals for Doug and Jayne, Jayne will be admitted to the hospital on June 23. Mom and I will be over there on June 22 to be with her. Mom and I will have an educational class to take on the procedure and what to expect the morning of June 24. Doug will start his shots (he is deathly afraid of needles) on June 25 and the Transplant Day will be June 29! Doug may be needed on the 30th also and then he will be able to go home. It is such a blessing that Doug is a match!!! Jayne will be in the hospital for 3 weeks after the transplant then will need 24 hour care for the following 3 months! Mom, Danny and I will be sharing the time to be with her at first then additional family and friends may help out as well!
Thanks for all your thoughts and prayers!!!

This weeks schedule!

Jayne is having a tough day with schedule changes! Tomorrow is her bone marrow biopsy. Danny has the day off so will able to be there for her! Wednesday will be her and Doug's physicals. We are waiting for the date and time for her psych evaluation. We are hoping to know on Thursday or Friday what day she will be admitted to the hospital to start an intense chemo round before the transplant and what day the transplant will be. Dad and Gail will be there for support today and Doug and his family will be in Portland tomorrow. Mom and I will be there soon...waiting for schedule confirmation! I can't wait to see her, she is such a strong person and she doesn't give herself enough credit!

From May till Today update!

As I said previously Jayne has been extremely sick this round of chemo and in and out of the hospital many times! With the support of her family and friends she is staying strong and is plowing through it! Some days slower than others! :)
The first of May when Jayne went to visit her doctor she was given a small bit of information that may save her life! Her file was sent to Oregon Health Science University (OHSU) to see if she would be a candidate for a bone marrow or stem cell transplant. This was great news since years earlier she had asked about it and they told her she would not be a candidate! Two weeks went by of hoping and many many prayers! Upon another visit to her doctor she was told that they would like her to meet a doctor at OHSU. This happened during the second week of May.
We got the wonderful news that Jayne would be a candidate for a bone marrow transplant and if she were to "give one year of her life, he would give her the rest of her life back"!!! What an absolute answer to prayer!

My family and Jayne's family took a quick weekend trip to Pacific City on the Oregon Coast to celebrate what we planned as the end of chemo celebration but it was so much more! It was a celebration of the amazing news that was given that week! I just wish Jayne was feeling better but what a wonderful weekend of relaxation and memories!
The next step was to have all the siblings check to see if they are a match! We got in touch with Todd in Spain and he ran right down to the doctor to get checked! He was extremely supportive! Doug and I received our packets to get our blood checked on May 26. I went down that day but Doug was in some remote place with work and would not be back to Boise till June 1. The day he got into town he went and got his blood tested!
Mom and Bill headed over to help Jayne get ready for Jarrod's graduation party on June 2 and then Dad, Gail and I headed over on June 4. On the way to Jayne's house from the airport Jayne received a call from OHSU...Todd and I are not a match! It was a very sad time! As much as I wanted to be the match, Jayne was the strong one and said "Hydi, I need you to be strong for me!" Boy, I love that girl!!! We were also told that Doug's first two of four tests did match but would not know anything till Tuesday June 8.
The focus was on Jarrod for the weekend! We had a fun graduation party for him on Saturday and then a very tearful graduation night on Monday! We are so proud of that boy!!!

Tuesday morning I was headed back to Boise! Doug picked me up from the airport, not more than 5 minutes after he dropped me off at home Jayne called with the AMAZING NEWS!!! Doug is a match!!!!!!

Jayne was scheduled for chemo (to keep her out of remission) on Thursday June 10. Her white blood cell count was too low to have chemo so everything now is in fast forward!!! Doug and Jayne are scheduled for a physical on Wednesday and Jayne could be admitted into the hospital to start the process rolling as soon as this Friday! We should know more tomorrow!
Have a wonderful day!!!

Up to Date

Thank you for visiting our blog, I hope to be able to keep you all posted on Jayne's progress during her struggle with non-Hodgkin's Lymphoma. I will try to get you up to date on her progress to date!

In May, 2006 Jayne was thinking she had an ulcer so had the doctor run some tests. After that Cat Scan the doctor came back and stated "yes you have an ulcer and the spots on your lungs have not changed." Puzzled of the spots...she was told that spots were found on a cat scan 8 months before and were noted to watch and follow up in 6 months. Nothing was told to Jayne at that doctors appointment 8 months earlier! After many many visits to the doctor and a second opinion they identified 24 spots between all 5 chambers of her lungs. She was told everything from... it is a fungus to being a scar from a childhood illness.
After fighting for months on February 1, 2007 she had a biopsy taken out of her center lobe of her lungs. The doctor came out to share the wonderful news with the family that he is 99% sure it is not cancer but will be sending it to the lab to confirm! We cried and rejoiced and made many phone calls to share the wonderful news!
On February 27, 2007 Jayne received a call from the Dr.'s office and was told that it was cancer...a very rare for of cancer called plasmacytoma. We did all the research we could on that form of cancer just to find out it was in fact diagnosed as Non-Hodgkin's Lymphoma!
We have been traveling this road with the first round of chemo starting in December 2007 that lasted 4 months. Jayne continued to work as much as she could and stayed strong and motivated! Jayne's cough went away and she started feeling better...her cough came back and many other side effects so the second round of chemo was started in November 2009.
This time the chemo was much stronger and Jayne was attempting to still work but her body was just not willing to cooperate! Jayne spent many days in the hospital between November and June! In March, Jayne's work asked for her to focus on herself and her health and try to come to come back to work July 1! They have been so supportive and wonderful during this time!
Well, you are almost caught up to date!