Jayne is home and celebrated 100 days since transplant!

Jayne got home from the hospital on Tuesday and celebrated her 100 days since transplant on Thursday!
She is still having fevers so is going daily to OHSU to get antibiotics to keep her fever down. They are running tests to see if the bacteria is back! We will know today.
Please keep her in your prayers!

Back in the Hospital

Jayne is back at OHSU! On Tuesday when I was talking to her on the phone her temp was 100.2. We were very concerned because we were told if it gets to 100.4 she would be admitted to the hospital. She went down to the hospital on Tuesday night and was given some medication, they took blood and was sent home. Yesterday morning she got a call from OHSU that all three blood tests came back positive for a bacteria in her blood so she was told to come immediately to the hospital! She spent 8 hours in the ER before she got moved to her room. Her fever was up to 102.6 at the highest but last night her fever broke!!! She has been given mass amounts of antibiotics to help fight the bacteria. Not sure how long she will be in the hospital at this time.
On a great note...the virus she has been fighting for the last two months there has not been any trace of it in her blood for the last two cycles so YAHOO!!! Also, her white blood cell count is up today!!! Oh, also she does not have to to her morning or evening IV anymore!!! Thanks for all the prayers and support!!!

Raffle for the Jamison Family!

A few of Jayne's friends came up with an amazing idea to have a raffle to raise money to help the Jamison family with the cobra medical costs and other expenses. Our Aunt Jo and Uncle Bill have donated a condo at the World Mark Resort in Depot Bay, OR for January 21, 22 and 23, 2011. The condo is a two bedroom and sleeps 6. This is an amazing time to be on the Oregon Coast...during whale watching!!!
The raffle tickets are only $5!!!
If you have any questions please contact Michelle at (503)798-1150
To purchase tickets please send money t0: Michelle Myers
3920 E. Evergreen Blvd.
Vancouver, WA 98661
Make checks out to: Jayne or Danny Jamison

Thank you so muck for your support and GOOD LUCK!!! The drawing will be made on October 31, 2010

Plugging Along Day +85

We went to the hospital yesterday...Jayne has had a stuffy runny nose so we were put in isolation. They drew her blood and when the results came back they told us that she will need 2 pints of blood and we would have to come back today. They also did a nasal drain sample and took it to culture to make sure that she does not a bad virus that they will need to address. This test takes a week to get back. Hopefully by then she will be feeling great!
We went back today and again were in isolation. She got her two pints of blood and some fluids and we were out in a few hours!
Jayne also got permission to go to the movies tomorrow! So we are all (Jayne, Danny, Jarrod, Kadee and I) are going to see The Grown Ups...we descided that we wanted to have a good laugh! This is great news! We are so excited! Jayne was also told she can make herself sandwiches and start doing small things for herself! This is also great news because as you all know Jayne is the caretaker and would do anything for anyone...now she can do things without asking for help!
Jayne and I are watching Survivor together and enjoying our time together. I am heading home on Friday but before I leave Jayne spoiled me with a massage at a spa! I am soo blessed to have such an amazing, strong, giving, beautiful sister!!!

Staying Strong!

It has been a few weeks since I last blogged and boy has it been crazy! Jayne has continued to become stronger each and every day.
Let's catch up to today...
August 17th I came over to be with Jayne for 10 days and our mom and Bill were on their way to a get away vacation headed to Victoria, Canada then to visit Bill's sister in law in Kalona, Canada then to visit friends in Ellensburg, WA then back to Jayne's. Mom and Bill were not feeling well on their trip out so they stopped for a few days in northern Washington then made their way to Mt. Vernon to visit mom's high school friend for a few days. On August 21 mom was walking up stairs and fell. She went to bed that night and by morning she was in major pain! Bill took her to the local hospital and within a few hours she was life flighted to Seattle with a broken back in two places.
Jayne was at her peak of her virus at this time with a count of 86,000 for her virus! I was taking care of my sweet sister but was able to get away on Tuesday the 24th for a drive to Seattle to see mom. Jayne really wanted to come with me but there was no way her doctor would have let her be that far away from her hospital at her peak time and her immune system so low!
Mom was in a body brace and not sure what was happening for the most part. Once the pain meds were under control they (mom and Bill) decided the best thing for her would be to get back to Boise ASAP. I did agree that the care and recovery would be best if it could be done in Boise!
I headed back to Portland late Tuesday night (with a flat tire on I5) and was able to take Jayne to her doctors appointment on Wednesday. Jayne's virus numbers were down to 54,000! What a blessing!!! :) Mom was in an ambulance on Wednesday with a 9 hour trip back to Boise!
With all this happening our dog of 14 years ate a Costco bag of chocolate covered pomegranates when Jeff was at work and passed away Wednesday night!
Sadly, I had to leave Jayne on Thursday the 26th to head back home to get my kids ready to start school on Monday. Jayne was in good hands with Danny being off work and her kids helping! It was not the best time for Danny to be off work for a few weeks but I believe it was an answer to prayer for him to be there to take care of his bride! He does such a good job even though he was nervous at first!
Mom had surgery on September 1 and got 2 titanium rods along her spine with 11 screws to hold it in place. She spent another week in the hospital after her surgery then was moved to The Elk's Rehab Hospital in Boise for rehab for a week. She was able to come home on September 16th and is adapting to her new home life!
Our Dad and Gail was able to come over to Jayne's on September 6th and stay till this morning and Danny has been back to work so it was great to have them here! She had a great visit from our Aunt Carol and Uncle Chuck who live in VA and went to her first restaurant since the transplant. She enjoyed their company along with some amazing oatmeal from The Heathman Lodge!
I was able to come back for a week on Friday the 17th and I am so impressed on how far Jayne has come with her energy level and motivation! Jayne's virus has gone down to just traces and Jayne is doing great! She has a Stroller (fancy walker) that she takes with her and is going everywhere! Gail, Jayne and I took a walk up to Albertson's yesterday before the rain hit and it was so nice to get fresh air and to see Jayne on a mission! ;)
Through this process the nurse in all of us has come out to be there for Jayne!
Last night Jayne and I went to Tana's house to visit with "The Bunco Babes" and made tie died shirts! It was great for Jayne to see many of her friends and to see her laugh and smile! What a wonderful night needed for both of us!!!
We go to the next doctors appointment on Tuesday...will keep you posted!

Day +53

I have been here for 5 days with Jayne and she is doing pretty good! She went to the Dr. with mom on Monday then I flew in Monday night and took over the reigns from my mom so that she could go on a mini vacation with Bill. Well, that has not worked out too well! Mom hurt her back last week and it still is bothering her and Bill got a bug that has kept him sick, sick, sick! Hopefully they will get better soon so they can enjoy some time together before mom returns to "work" on Thursday afternoon when I head home.
We were back to the hospital on Tuesday and Thursday. Tuesday was a quick hour visit but Thursday was another story. We were there for 9 hours so Jayne could have a visit with her Dr., get platelets, blood, potassium, magnesium, fluids and a flu vaccine. Both days Jayne walked in and out of the clinic and that is a huge step for her!
We will be back to the hospital tomorrow for blood work and again on Monday. When we see the Dr. on Monday she will let us know if we will be changing Jayne's medication to try to attack this crazy virus that her body is having a hard time fighting.
I am loving being here with her, I am sooo blessed!

A message from our mom

Our mom has asked me to post this on the blog!

I have been with Jayne here in Vancouver since she got out of the hospital on June 19th. She is doing great and she's the best patient I've ever had. Yes, I am her total care giver, but I sleep in the motor home they have parked next to their bedroom and we have a baby monitor she can call on if anything happens at night when Danny is sleeping with her. We haven't had to really use the monitor, cuz Jayne has been doing so well. So far, she has not had any fever so that is a good sign.

We go to Clinic every Tuesday and Friday at OHSU (Portland) almost all day, and they do blood work. give her IV's as needed, etc. I have been giving her extra hydration at home (IV Normal Saline) because she hasn't been drinking her full 72 oz of water a day. With encouragement she takes sips frequently, but complains of nausea when she drinks too much. I've been IV'ing her for about 10 days once a day, and will continue according to her blood work. Also, today she started on another IV, two times a day, because she is getting CMV (cytomegalovirus) which is usually present in everyone's body but without having a good immunity after the transplant, these people are usually more prone to getting pneumonia's, lung disease, inflammation of the retina, or death...so the IV's will prevent her from a full blown infection. Her blood work yesterday showed suspicious cells so we are starting the IV's (like an antibiotic, but some chemo in it to kill the virus). We will do this IV until the blood tests come back normal (a couple weeks or more). Otherwise, Jayne is tired off and on, but has UP days too, so I am glad I can be here. We have to keep everything STERILE and have been doing really good with GLOVES, SIGNS and a lot of hand washing, soap and antibacterial soaps, etc.

Hydi will be over August 17th to relieve me for 10 days. Bill will come pick me up and we will go up to Vancouver Island, Kelona, and make the loop to come back to Vancouver, Wa on 8/25 to release Hydi to go back home and then I will stay again until Sept. 18th, then I fly home (to Meridian) and Hydi comes over here, until the 25th of September. I'll come back the 25th (Hydi will go home) until Jayne's 100th day on October 7th when she can be more free to do her own thing, and does not need a 24/7 caregiver. If Jayne still needs me, I will stay, but Bill is flying over here October 6th to take me home....on the 7th!! He is really lonesome and ready for me to come home. I keep telling him, ABSENCE MAKES THE HEART GROW STRONGER....Ha! Ha!

Jayne's vision got a bit better but she did pick up some reading glasses that seem to help. The doctor recommended not to get glasses because there is a high chance that her vision will continue to change.
She had a great time visiting with her mother in law over the weekend! Kadee has been at my house since Thursday and we are having fun here!
The doctor started weaning Jayne off some of her meds...good sign!!! Keep up the great work Jayne! You are doing great!!!

Vision Has to get better!

Jayne has been very groggy today. She made a visit to OHSU and is ready to go home and have a nap! Jayne's vision has become very bad and she is having a hard time focusing. If the extra IV fluids that she has been receiving this week do not help she will go into the doctor next week to get her eyes checked.
Danny's mom is there with our mom right now and she is enjoying her time with her!

Doing Good!

Jayne has been home since last Monday evening and is doing well! She spent all day Tuesday, Wednesday and Friday at OHSU but there is nothing like sleeping in her own bed! It has been hard for Jayne to have everyone do everything for her but she is adjusting! I came home on Thursday evening and our mom is with Jayne 24/7! She is very blessed to have our mom able to be there to take care of her!
Thank you for all the prayers and thoughts...keep them coming please!!

Heading Home Today!!!

Today is the day! Jayne's counts are right where the doctor wants them and she gets to go home!! I drove this morning to Cascade (2 hours each way) to drop Blake (my son) off at Church camp and in a few minutes my mom and I will be headed to Vancouver to be with Jayne! It is 400 miles to be with her but soooo worth it. I will fly home Thursday and our mom will stay there with her till August 16 when I can go back and relieve mom for 10 days! Mom has her car (she calls Bunny) packed sooo full, you would think she was moving in with Jayne! :)
Thank you to everyone who went to visit Jayne in the hospital...I don't want to leave anyone out so I am not going to list names. She is blessed with so many loving friends and family! She was so happy to see all of you, her biggest surprise of all was our Uncle Paul that drove over from Boise and made a surprise visit! Thanks Uncle Paul!!!
Another favorite story from the hospital was when Val and Mike (or was it Sally and Fred ) came in and told Jayne a story about the lady in Joann Fabrics. Val and Jayne did not know her and the lady offered to pay for the fabric Val had in her arms after Val telling her that she is making for Jayne. This brought tears to our eyes! People are still so gracious!
Well...we are off..pray for safe travels!!!

Day +16 GREAT NEWS

Today is a great day!!! Two days in a row Jayne's counts have gone up and she is in great spirits! It looks like the amazing gift from Doug is grafting and those cells are doing what they were told!
The doctor told Jayne today that she could be home within the next week! Thanks for all the thoughts and prayers!
Now time for my mom and I to make plans to go back to Portland for the extensive home care of the best sister I could have ever dreamed of!!!

Day +12 Taking it day by day

I am sorry I have not posted for a few days!
Jayne has had more tough days! Her mouth is broken out with sores inside her mouth and on her lips. This is making it very hard for her to eat so yesterday they had to do a feeding tube in her port to get her some calories and energy. Today she was told she now is a diabetic. This should go away once she gets stronger and decreases her medication.
Her white blood cell count was up to .04 a few days ago but is back down to .01. This is below where the doctors expect her to be so we need prayers that her white blood cell count increases soon! She will not be released from the hospital till her counts are at least 500.
She had a wonderful visit today with Aunt Alda and our cousin Nicole from Yakima. I know that her days are long in the hospital and she welcomes all visitors!

Day +8 Tough Days!

Yesterday and today have been tough days for Jayne! The medication is making her "loopier" and saying things that make the nurses wonder what she is talking about! LOL When asked basic questions she is able to answer them so they know it is just the medication so they are changing it up to try to get her back to "her normal" :)
When I was talking to her today she she said "hold on my boyfriend is on the other line"! They have only been married for 21 years last week! She is so adorable!!!
Her mouth sores are healing slowly and her white blood cell counts are down to .01! Great news!!!

Day +6

Jayne had a tough 4th of July! She was very tired and is having many side effects from the chemo.
She was very blessed to be able to watch the fireworks over Portland from her bedroom window. How amazing is it that she was able to lay in bed and enjoy the fireworks going off right outside at her level! OHSU is built on a hill above Portland so it was perfect!

Today was a better day but still many side effects! She was up today and took two walks around the unit and sat up and visited with her friends that came to visit today. She really enjoyed seeing Val and her husband today!

Everyday when I talk to Jayne she always says.... tomorrow is going to be a better day! She has a wonderful outlook!! God is Good!!!

Day +4 Tired but in good spirits

Jayne had another rough night last night but is in good spirits! Without being there it is tough for me but I know that I would not want her anywhere else with what she is going through. The doctors, nurses and CNA's have all been wonderful. The nurses have only 3 patients per shift so she gets the attention she needs right now!
I also wanted to note that our cousin Dan is running the City of Trees Marathon in Boise in October with Team in Training. Team in Training raises money for the Leukemia Lymphoma Society. He is honoring Jayne with his run. Please follow his progress and feel free to donate money to help find a cure with the Leukemia and Lymphoma Society. The link is http://pages.teamintraining.org/oswim/trees10/dmaher .

Day +3 Bitter Sweet Day

Today was a very tough day for Jayne but she has a great attitude and is looking forward to having tomorrow be a better day!
It was a very tough day for my mom and I today also! We headed back to Boise to be with our families. It was wonderful to see them but I miss Jayne already!
Jayne had lots of visitors today including Danny, Kadee, Jarrod, Morgan and Tammy. We left knowing that Jayne is in good hands at OHSU and will return in a few weeks to be with her again!
Jayne will have a small dose of chemo tonight and hopfully her last dose on day +7.

Day +2 Chemo is working!

Last night we noticed a rash on Jayne's arm that was spreading where her pic line was. Her pic line was removed once her port was put in and working. It was used previously for her chemo. The doctor came in and decided to have an ultrasound done to ensure that there was not a blood clot at the sight. She finally returned to the room about 12:30 this morning with great news! No blood clot. The nurses are putting topical cream to help clear it up.
Jayne's white blood cell count went down to 1 today and is right on schedule... the chemo takes a few days to kick in and kill off all her white blood cells. She has been sleeping most of the day and does not have much energy at all! Getting to the restroom and back takes all her energy.
Bit of information I found interesting... Doug's blood type is O negative and Jayne's is O positive. With the bone marrow transplant her blood type will now be O negative!
Prayers for strength and healing are appreciated!

Day +1 God is Great

Today was a blessing for all of us! Jayne has not had any signs of rejecting the bone marrow transplant and Doug was discharged with his heart back in normal sinus rhythm. Doug's nurse said he could walk a short hallway to the window and back. He walked it a few times to stretch his legs, when he returned to the room his heart was beating perfect!!! I told him he just needed a different view!
Jayne took a few walks around the unit but has been sleeping quite a bit. Today was the first day Jayne's white blood cell count is down to where she is neutropenic (low immune system). Her numbers will continue to drop until the red blood cells attach and start forming bone marrow, this will be around day +15.
Every Wednesday on this unit for patients, family and friends from 2:30-4:30 a group of volunteers come in and have a craft room set up with a variety of different crafts to make. I went down today when Jayne was sleeping and made my girls and I matching bracelets so when I come back to take care of Jayne over the next few months we can wear our matching bracelets!
Mom and I miss our families at home and we are so blessed to have supportive husbands (and my kids)...We wouldn't miss this for anything in the world!
Love you Jayne!!!
I can do all things through Christ who strengthens me! Phil 4:13

Day +1

Jayne is getting weaker each day and sleeping more but the transplant went smooth! Doug spent the night last night in the hospital and by mid-morning he was back into normal sinus rhythm. Still waiting to see what the doctors want to do...release him, medications, keep him... will keep you posted!
It has been so wonderful having all the prayers and well wishes! Please keep praying, recovery is at least a year, we are on day +1!

All the Red Blood Cell Babies are in!

Jayne was extremely calm at the start of the transplant! At 8:20 this evening Doug's spun red blood cells started being put into Jayne's body and the start of Jayne's new life! The process went seamless with Jayne! She rested through most of it and is now sleeping like a baby! Her anxiety level has dropped dramatically.

Doug has been admitted into the hospital for his abnormal heart rate. He was able to get his port out tonight since he was able to give Jayne 5.16 million red blood cell babies! The doctor wanted at least 3 million but wanted to see 5 million. Praise the Lord!

His heart rate keeps bouncing around 14o...praying with a good night sleep and his anxiety level going down he will wake up with his heart rate back to normal!

Mom is staying in the "family room" a sleep room for families tonight on floor 13, I am staying with Jayne on floor 14 and Doug is on floor 11. Anyone take dibs on any other floors? :)

When Jayne was done with her transplant and Doug got his port out they were able to see each other since 7:45 this morning! It was emotional but wonderful! Doug has given such an amazing gift and never thought twice about it! Love you Doug!!!

Doug is all done!

Doug had a tough start with anxiety this morning! He was told he would be put out to get his port put in this morning. He was not sedated he was nervous! Once the doctor put the port into his heart his heart went into irregular heart rate. We are praying that now that the procedure is all done he will go back into regular rhythm. Thanks for being such a great sport Doug! Love you!!!

After three hours of the blood being circulated through the machine it separated about a cup of white blood cells and blood. It is now at the lab and the white blood cells will be counted and then the transplant will start with Jayne!

Jayne's room will start being prepped in about an hour!

Waiting for Test Results

Doug was able to get his port put in this morning but when they put it in it caused his heart to go into atrial fibrillation (irregular hear rate). An echo cardiogram and thyroid tests were done. We are waiting for test results before we can move forward with the transplant.
I will keep you posted! Thank you for your prayers!

Today is the day!!!

Doug was prepped for surgery this morning and just went in! We are anxiously waiting to start the process today!!! Jayne has lots of anxiety but is holding together pretty well!

Girls Slumber Party

After everyone left tonight Jayne and I had special sister time together! When we went to the beach together in May, Jayne purchased us matching jammies so we matched tonight at the hospital! Jayne has been in great spirits and extremely strong! We are scared for the unknown but know that it is in the hands of our Lord!

Lots of visitors bringing smiles and hugs!

Today was a very busy day with visitors bringing their smiles and hugs for Jayne! Great friends and co-workers took time out of their day to come and see Jayne. She is very humbled by all the love and support she is receiving from her friends and from people she doesn't even know! The power of prayer is amazing!

Dad and Doug made it today to OHSU! It was great to see Doug and I think it made us all realize that this is really happening! Doug has been so selfless to put his life on hold to save Jayne's! Words can not say how grateful we are for what he is doing! Danny spent a while this evening reading the transplant manual... if you know Danny you know that there were a few times he let out a snore that woke him up! :) He is doing such a great job holding down the fort and being very supportive to Jayne!

Day -1 Getting Ready

Jarrod, Lucky, Kadee and Zoe sending their love to Jayne and can't wait till she comes home! Jayne is scared and excited for her new "birthday" tomorrow! The doctor told her that she will have to get all of her immunizations all over again! I didn't even think about this...so many things and is overwhelming for us all!

The chemo today forms sores in Jayne's mouth so for a few hours while she was getting her chemo she had to "freeze" her mouth with popcycles, ice cubes and ice cream! I know my kids would love to "freeze" their mouth! :)

Doug and Dad are on their way to Portland! Praying for safe travels!

Day -2

Last night was another tough night and tough morning but as the day went on Jayne was able to get some energy to walk around the unit but she was exhausted. The chemo is starting to take a toll on her.

Kadee, Danny, mom and I went for a ride on the tram today to get some fresh air and have a quick ride to the bottom of the hill and back up. Round trip it takes about 5 minutes and it sure was a beautiful view!

Jayne is resting lots today and getting her body ready for the transplant on Tuesday. Dad and Doug will be here tomorrow! I know that the 4 shots a day have been tough for Doug but he has been a trooper! THANKS DOUG!!!

Day -3 Enjoying the great weather

Today has been a good day so far! This morning Tammy and Taylor Folden came by to visit with Jayne and had fun looking at Jayne's wedding photo album and other albums that mom brought to the room for everyone to laugh at our beautiful outfits of the 80's and 90's and remind us of fun times. Chemo went well and after that was done mom, Danny, Jayne and I went outside to enjoy the beautiful weather and view. When Jayne leaves this floor she has to wear a "Daisy Duck" HEPA filter mask. I told her we need to put bows on it to match her outfits! ;) We stayed outside on the deck off floor 9 for about 20 minutes and Jayne was ready to come back in! It was good to get out of the room and enjoy the fresh air and sunshine. Now it is nap time!

Day -4 and feeling good

Yesterday was a good day for Jayne with the same chemo as Thursday, today and tomorrow. Monday will be a more intense chemo. Jayne is up to 2 laps around the floor three times each day plus her arm and leg exercises.
Danny, Kadee and Jarrod came up to visit last night and enjoyed visiting with Jayne and giving hugs!
I went for a long walk and found a Starbucks in the hospital!!! :) I am surprised how big this hospital is...there is OHSU main Hospital, Dornbecker Children's Hospital, VA Hospital, then also the Kohler Pavilion, Physicians Pavilion, Dentistry school, eye clinic, plus the tram to take down to more... You could walk for hours and never retrace your tracks as long as you know how to get back! It is extremely confusing but mom and I are getting the hang of it...I think!

Day -5 Jayne gets pampered!

Last night was a tough night for Jayne! She had an allergic reaction to her chemo and she felt like her lips, mouth and sinuses were on fire! After having the doctor come in at 3 A.M. and getting her the right meds she was able to sleep for a short time before waking up again in pain. Last nights chemo was a single dose so she will not have that chemo again! She was having a hard time smelling alcohol...the one to clean the ports with ;) but that is getting better as the day goes on.

The chemo she received today lasted 2 1/2 hours and she seems to be doing pretty good! She was up today and took a few laps around the unit and was cruzin'! We are so proud of her...she is doing great!

Mom and I took a class this morning for a few hours on what to expect in the hospital and how to care for Jayne when she gets home!

Jayne had her first friends come to visit and had a great visit from Kathi and Karina! Thanks for coming to visit, you put a smile on her face! Thank you for all the prayers, emails and phone calls from so many of you!

After her second lap around the unit her nurse nominated her to have a complimentary massage from a licensed massage therapist that specializes in Oncology patients! Jayne is now very relaxed and is looking forward to a good night sleep...well a good night with being woke up at least every four hours by the nurse.

Mom and I will be heading back to Jayne's house soon and will be back in the morning!

Room with a View

Jayne has been moved to her room on the 14th floor and it has an amazing view of part of the city, the river and Mount Hood! She has settled into her room and we moved her into the drawers and closet.

Our mom made a great poster with Jarrod, Kadee, Blake, Sydni, Chloe, Toni, Tori, Cody and Marina on it that are smiling at Jayne and made some positive signs that we hung up in her room. Any visitors that come to visit except who lives with Jayne have to gown up and glove up till test results come back on Friday to confirm she is not positive for VRE.

Kadee and Danny came up after work tonight to visit! Hugs are priceless!

Jayne will be getting her first dose of chemo tonight. The doctor said this would be the most intense of the chemo's...this week will be tough but next week will be the hardest with all the side effects from the chemo. She is not able to bring her dog (Zoe) or her cat (Lucky) with her to the hospital so Jeff, the kids and I got her a dog and cat stuffed animal so she can sleep with them at the hospital!
Jayne is in good spirits but the drugs do help! :)

The port is in!

Jayne is out of surgery after a 2 hour delay (Dr. had emergency surgery) and the port is in! Mom and I will continue to wait in the waiting room! The doctor said it could be hours before she will be out of recovery and moved into her room on the 14th floor of OHSU and we will be able to see her. I have kept Danny informed since he was doing his best to work today with Jayne on his mind!
I will blog with her room number and when chemo starts when she settles into her room she will have for the next month!

Here we go!

Yesterday mom and I drove from Boise to Vancouver to be here with Jayne. The process starts today to save her life! We are up early this morning to get ready to head to OHSU. Jayne has to be there at 9:30 this morning. She will first have a port put in then they will start her extremely intense chemo today to get her body ready for the transplant.
Doug picked up his shots and will start his 4 shots a day in his stomach on Friday.
This is a huge step but with all the anxiety we are all ready!!!

Dates are set!

After a very painful bone marrow biopsy Jayne is home and resting! Doug, Jeannie, Toni, Dad and Gail will be over tonight for a BBQ but Jayne is staying in bed! Auntie Jo and Uncle Bill are bringing our cousin Mike over to see Jayne for a quick visit while he is in town. Jayne is looking forward to seeing him tonight!
With everything tomorrow going smooth with the physicals for Doug and Jayne, Jayne will be admitted to the hospital on June 23. Mom and I will be over there on June 22 to be with her. Mom and I will have an educational class to take on the procedure and what to expect the morning of June 24. Doug will start his shots (he is deathly afraid of needles) on June 25 and the Transplant Day will be June 29! Doug may be needed on the 30th also and then he will be able to go home. It is such a blessing that Doug is a match!!! Jayne will be in the hospital for 3 weeks after the transplant then will need 24 hour care for the following 3 months! Mom, Danny and I will be sharing the time to be with her at first then additional family and friends may help out as well!
Thanks for all your thoughts and prayers!!!

This weeks schedule!

Jayne is having a tough day with schedule changes! Tomorrow is her bone marrow biopsy. Danny has the day off so will able to be there for her! Wednesday will be her and Doug's physicals. We are waiting for the date and time for her psych evaluation. We are hoping to know on Thursday or Friday what day she will be admitted to the hospital to start an intense chemo round before the transplant and what day the transplant will be. Dad and Gail will be there for support today and Doug and his family will be in Portland tomorrow. Mom and I will be there soon...waiting for schedule confirmation! I can't wait to see her, she is such a strong person and she doesn't give herself enough credit!

From May till Today update!

As I said previously Jayne has been extremely sick this round of chemo and in and out of the hospital many times! With the support of her family and friends she is staying strong and is plowing through it! Some days slower than others! :)
The first of May when Jayne went to visit her doctor she was given a small bit of information that may save her life! Her file was sent to Oregon Health Science University (OHSU) to see if she would be a candidate for a bone marrow or stem cell transplant. This was great news since years earlier she had asked about it and they told her she would not be a candidate! Two weeks went by of hoping and many many prayers! Upon another visit to her doctor she was told that they would like her to meet a doctor at OHSU. This happened during the second week of May.
We got the wonderful news that Jayne would be a candidate for a bone marrow transplant and if she were to "give one year of her life, he would give her the rest of her life back"!!! What an absolute answer to prayer!

My family and Jayne's family took a quick weekend trip to Pacific City on the Oregon Coast to celebrate what we planned as the end of chemo celebration but it was so much more! It was a celebration of the amazing news that was given that week! I just wish Jayne was feeling better but what a wonderful weekend of relaxation and memories!
The next step was to have all the siblings check to see if they are a match! We got in touch with Todd in Spain and he ran right down to the doctor to get checked! He was extremely supportive! Doug and I received our packets to get our blood checked on May 26. I went down that day but Doug was in some remote place with work and would not be back to Boise till June 1. The day he got into town he went and got his blood tested!
Mom and Bill headed over to help Jayne get ready for Jarrod's graduation party on June 2 and then Dad, Gail and I headed over on June 4. On the way to Jayne's house from the airport Jayne received a call from OHSU...Todd and I are not a match! It was a very sad time! As much as I wanted to be the match, Jayne was the strong one and said "Hydi, I need you to be strong for me!" Boy, I love that girl!!! We were also told that Doug's first two of four tests did match but would not know anything till Tuesday June 8.
The focus was on Jarrod for the weekend! We had a fun graduation party for him on Saturday and then a very tearful graduation night on Monday! We are so proud of that boy!!!

Tuesday morning I was headed back to Boise! Doug picked me up from the airport, not more than 5 minutes after he dropped me off at home Jayne called with the AMAZING NEWS!!! Doug is a match!!!!!!

Jayne was scheduled for chemo (to keep her out of remission) on Thursday June 10. Her white blood cell count was too low to have chemo so everything now is in fast forward!!! Doug and Jayne are scheduled for a physical on Wednesday and Jayne could be admitted into the hospital to start the process rolling as soon as this Friday! We should know more tomorrow!
Have a wonderful day!!!

Up to Date

Thank you for visiting our blog, I hope to be able to keep you all posted on Jayne's progress during her struggle with non-Hodgkin's Lymphoma. I will try to get you up to date on her progress to date!

In May, 2006 Jayne was thinking she had an ulcer so had the doctor run some tests. After that Cat Scan the doctor came back and stated "yes you have an ulcer and the spots on your lungs have not changed." Puzzled of the spots...she was told that spots were found on a cat scan 8 months before and were noted to watch and follow up in 6 months. Nothing was told to Jayne at that doctors appointment 8 months earlier! After many many visits to the doctor and a second opinion they identified 24 spots between all 5 chambers of her lungs. She was told everything from... it is a fungus to being a scar from a childhood illness.
After fighting for months on February 1, 2007 she had a biopsy taken out of her center lobe of her lungs. The doctor came out to share the wonderful news with the family that he is 99% sure it is not cancer but will be sending it to the lab to confirm! We cried and rejoiced and made many phone calls to share the wonderful news!
On February 27, 2007 Jayne received a call from the Dr.'s office and was told that it was cancer...a very rare for of cancer called plasmacytoma. We did all the research we could on that form of cancer just to find out it was in fact diagnosed as Non-Hodgkin's Lymphoma!
We have been traveling this road with the first round of chemo starting in December 2007 that lasted 4 months. Jayne continued to work as much as she could and stayed strong and motivated! Jayne's cough went away and she started feeling better...her cough came back and many other side effects so the second round of chemo was started in November 2009.
This time the chemo was much stronger and Jayne was attempting to still work but her body was just not willing to cooperate! Jayne spent many days in the hospital between November and June! In March, Jayne's work asked for her to focus on herself and her health and try to come to come back to work July 1! They have been so supportive and wonderful during this time!
Well, you are almost caught up to date!