Saturday, October 9, 2010

Jayne is home and celebrated 100 days since transplant!

Jayne got home from the hospital on Tuesday and celebrated her 100 days since transplant on Thursday!
She is still having fevers so is going daily to OHSU to get antibiotics to keep her fever down. They are running tests to see if the bacteria is back! We will know today.
Please keep her in your prayers!

Thursday, September 30, 2010

Back in the Hospital

Jayne is back at OHSU! On Tuesday when I was talking to her on the phone her temp was 100.2. We were very concerned because we were told if it gets to 100.4 she would be admitted to the hospital. She went down to the hospital on Tuesday night and was given some medication, they took blood and was sent home. Yesterday morning she got a call from OHSU that all three blood tests came back positive for a bacteria in her blood so she was told to come immediately to the hospital! She spent 8 hours in the ER before she got moved to her room. Her fever was up to 102.6 at the highest but last night her fever broke!!! She has been given mass amounts of antibiotics to help fight the bacteria. Not sure how long she will be in the hospital at this time.
On a great note...the virus she has been fighting for the last two months there has not been any trace of it in her blood for the last two cycles so YAHOO!!! Also, her white blood cell count is up today!!! Oh, also she does not have to to her morning or evening IV anymore!!! Thanks for all the prayers and support!!!

Wednesday, September 22, 2010

Raffle for the Jamison Family!

A few of Jayne's friends came up with an amazing idea to have a raffle to raise money to help the Jamison family with the cobra medical costs and other expenses. Our Aunt Jo and Uncle Bill have donated a condo at the World Mark Resort in Depot Bay, OR for January 21, 22 and 23, 2011. The condo is a two bedroom and sleeps 6. This is an amazing time to be on the Oregon Coast...during whale watching!!!
The raffle tickets are only $5!!!
If you have any questions please contact Michelle at (503)798-1150
To purchase tickets please send money t0: Michelle Myers
3920 E. Evergreen Blvd.
Vancouver, WA 98661
Make checks out to: Jayne or Danny Jamison

Thank you so muck for your support and GOOD LUCK!!! The drawing will be made on October 31, 2010

Plugging Along Day +85

We went to the hospital yesterday...Jayne has had a stuffy runny nose so we were put in isolation. They drew her blood and when the results came back they told us that she will need 2 pints of blood and we would have to come back today. They also did a nasal drain sample and took it to culture to make sure that she does not a bad virus that they will need to address. This test takes a week to get back. Hopefully by then she will be feeling great!
We went back today and again were in isolation. She got her two pints of blood and some fluids and we were out in a few hours!
Jayne also got permission to go to the movies tomorrow! So we are all (Jayne, Danny, Jarrod, Kadee and I) are going to see The Grown Ups...we descided that we wanted to have a good laugh! This is great news! We are so excited! Jayne was also told she can make herself sandwiches and start doing small things for herself! This is also great news because as you all know Jayne is the caretaker and would do anything for anyone...now she can do things without asking for help!
Jayne and I are watching Survivor together and enjoying our time together. I am heading home on Friday but before I leave Jayne spoiled me with a massage at a spa! I am soo blessed to have such an amazing, strong, giving, beautiful sister!!!

Sunday, September 19, 2010

Staying Strong!

It has been a few weeks since I last blogged and boy has it been crazy! Jayne has continued to become stronger each and every day.
Let's catch up to today...
August 17th I came over to be with Jayne for 10 days and our mom and Bill were on their way to a get away vacation headed to Victoria, Canada then to visit Bill's sister in law in Kalona, Canada then to visit friends in Ellensburg, WA then back to Jayne's. Mom and Bill were not feeling well on their trip out so they stopped for a few days in northern Washington then made their way to Mt. Vernon to visit mom's high school friend for a few days. On August 21 mom was walking up stairs and fell. She went to bed that night and by morning she was in major pain! Bill took her to the local hospital and within a few hours she was life flighted to Seattle with a broken back in two places.
Jayne was at her peak of her virus at this time with a count of 86,000 for her virus! I was taking care of my sweet sister but was able to get away on Tuesday the 24th for a drive to Seattle to see mom. Jayne really wanted to come with me but there was no way her doctor would have let her be that far away from her hospital at her peak time and her immune system so low!
Mom was in a body brace and not sure what was happening for the most part. Once the pain meds were under control they (mom and Bill) decided the best thing for her would be to get back to Boise ASAP. I did agree that the care and recovery would be best if it could be done in Boise!
I headed back to Portland late Tuesday night (with a flat tire on I5) and was able to take Jayne to her doctors appointment on Wednesday. Jayne's virus numbers were down to 54,000! What a blessing!!! :) Mom was in an ambulance on Wednesday with a 9 hour trip back to Boise!
With all this happening our dog of 14 years ate a Costco bag of chocolate covered pomegranates when Jeff was at work and passed away Wednesday night!
Sadly, I had to leave Jayne on Thursday the 26th to head back home to get my kids ready to start school on Monday. Jayne was in good hands with Danny being off work and her kids helping! It was not the best time for Danny to be off work for a few weeks but I believe it was an answer to prayer for him to be there to take care of his bride! He does such a good job even though he was nervous at first!
Mom had surgery on September 1 and got 2 titanium rods along her spine with 11 screws to hold it in place. She spent another week in the hospital after her surgery then was moved to The Elk's Rehab Hospital in Boise for rehab for a week. She was able to come home on September 16th and is adapting to her new home life!
Our Dad and Gail was able to come over to Jayne's on September 6th and stay till this morning and Danny has been back to work so it was great to have them here! She had a great visit from our Aunt Carol and Uncle Chuck who live in VA and went to her first restaurant since the transplant. She enjoyed their company along with some amazing oatmeal from The Heathman Lodge!
I was able to come back for a week on Friday the 17th and I am so impressed on how far Jayne has come with her energy level and motivation! Jayne's virus has gone down to just traces and Jayne is doing great! She has a Stroller (fancy walker) that she takes with her and is going everywhere! Gail, Jayne and I took a walk up to Albertson's yesterday before the rain hit and it was so nice to get fresh air and to see Jayne on a mission! ;)
Through this process the nurse in all of us has come out to be there for Jayne!
Last night Jayne and I went to Tana's house to visit with "The Bunco Babes" and made tie died shirts! It was great for Jayne to see many of her friends and to see her laugh and smile! What a wonderful night needed for both of us!!!
We go to the next doctors appointment on Tuesday...will keep you posted!

Friday, August 20, 2010

Day +53

I have been here for 5 days with Jayne and she is doing pretty good! She went to the Dr. with mom on Monday then I flew in Monday night and took over the reigns from my mom so that she could go on a mini vacation with Bill. Well, that has not worked out too well! Mom hurt her back last week and it still is bothering her and Bill got a bug that has kept him sick, sick, sick! Hopefully they will get better soon so they can enjoy some time together before mom returns to "work" on Thursday afternoon when I head home.
We were back to the hospital on Tuesday and Thursday. Tuesday was a quick hour visit but Thursday was another story. We were there for 9 hours so Jayne could have a visit with her Dr., get platelets, blood, potassium, magnesium, fluids and a flu vaccine. Both days Jayne walked in and out of the clinic and that is a huge step for her!
We will be back to the hospital tomorrow for blood work and again on Monday. When we see the Dr. on Monday she will let us know if we will be changing Jayne's medication to try to attack this crazy virus that her body is having a hard time fighting.
I am loving being here with her, I am sooo blessed!

Sunday, August 8, 2010

A message from our mom

Our mom has asked me to post this on the blog!

I have been with Jayne here in Vancouver since she got out of the hospital on June 19th. She is doing great and she's the best patient I've ever had. Yes, I am her total care giver, but I sleep in the motor home they have parked next to their bedroom and we have a baby monitor she can call on if anything happens at night when Danny is sleeping with her. We haven't had to really use the monitor, cuz Jayne has been doing so well. So far, she has not had any fever so that is a good sign.

We go to Clinic every Tuesday and Friday at OHSU (Portland) almost all day, and they do blood work. give her IV's as needed, etc. I have been giving her extra hydration at home (IV Normal Saline) because she hasn't been drinking her full 72 oz of water a day. With encouragement she takes sips frequently, but complains of nausea when she drinks too much. I've been IV'ing her for about 10 days once a day, and will continue according to her blood work. Also, today she started on another IV, two times a day, because she is getting CMV (cytomegalovirus) which is usually present in everyone's body but without having a good immunity after the transplant, these people are usually more prone to getting pneumonia's, lung disease, inflammation of the retina, or death...so the IV's will prevent her from a full blown infection. Her blood work yesterday showed suspicious cells so we are starting the IV's (like an antibiotic, but some chemo in it to kill the virus). We will do this IV until the blood tests come back normal (a couple weeks or more). Otherwise, Jayne is tired off and on, but has UP days too, so I am glad I can be here. We have to keep everything STERILE and have been doing really good with GLOVES, SIGNS and a lot of hand washing, soap and antibacterial soaps, etc.

Hydi will be over August 17th to relieve me for 10 days. Bill will come pick me up and we will go up to Vancouver Island, Kelona, and make the loop to come back to Vancouver, Wa on 8/25 to release Hydi to go back home and then I will stay again until Sept. 18th, then I fly home (to Meridian) and Hydi comes over here, until the 25th of September. I'll come back the 25th (Hydi will go home) until Jayne's 100th day on October 7th when she can be more free to do her own thing, and does not need a 24/7 caregiver. If Jayne still needs me, I will stay, but Bill is flying over here October 6th to take me home....on the 7th!! He is really lonesome and ready for me to come home. I keep telling him, ABSENCE MAKES THE HEART GROW STRONGER....Ha! Ha!